It's hard to believe today was Thanksgiving. It sure didn't feel like it to us. Our day started much like every day has this week. We went to Claire's room so I could feed her and we could talk to the doctors during their daily rounds. It seems like each day we are dealt with another new development in Claire's evaluation. Today she had to be hooked up to an oxygen tank. She has been breathing perfectly on her own all this time but this morning she started to continuously drop her oxygen levels and forget to breathe. It has been so hard to deal with since she had been doing great with breathing on her own until now. I'm definitely feeling more discouraged than ever. There seems to be a new hurdle added to her list each day. It's been a very emotional day. It looks like we still have a long road in the NICU ahead of us. Here is Claire's new look.
My parents came and spent the day with us, which helped so much. It was so nice to have them here as a distraction from the discouragement we had been feeling. We played some card games and my mom made a very yummy dinner. We decided not to do a Thanksgiving dinner... we're saving that for when Claire is home and we can have the special meal to celebrate.
Despite these hardships we've been facing, Thanksgiving was extra special to us this year. What more could we ask for than a sweet baby girl?! What an amazing gift we've been given... one we are truly thankful for. When I reflect on this holiday, I get tears in my eyes because I am so deeply thankful for my daughter.
3 comments:
Annie,
I know that you are discouraged. I would really like to give Rachael your number if it is okay with you. The twins were in the NICU for so long and had so many setbacks it seemed as if we would never get them home. When talking to her today (and at the time) she kept saying, "No one understands the emotions of dealing with it until they go through it." Know that we are praying for you, and although you are discouraged and frustrated, we have 2 healthy, happy almost 2 year olds that 2 years ago couldn't breathe on their own, underwent surgery after surgery, had blood transfusions and baked under the billi lights. God is still on the throne and knows exactly what He is doing. Claire is in His hands, which is the safest harbor she can be in. I love you.
Just wanted to let you know that I am thinking about you all and hope that some positive updates come soon. Reading through your blog updates, it's amazing to see two parents who are so positive, trusting in God, and encouraging for their young daughter-stay confident and I hope that you will get to go home soon. My thoughts are prayers are with you all:)
we love you all..hang in, He is good and will see you thru it all.
"being strengthened with all power according to his glorious might so that you may have great endurance and patience, and joyfully giving thanks to the Father" Col 1:11-2
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